A stoma can feel frightening when you first hear the word — but with the right preparation and care, the vast majority of people return to a full, normal life: working, travelling, exercising and eating well. And in colorectal cancer surgery, many stomas are temporary. This guide explains everything: what a stoma is, how to care for it day to day, how to solve common problems, and how reversal works.
A stoma is an opening made on the surface of the abdomen that allows waste to leave the body into a pouch (bag), instead of passing the usual way through the back passage. The surgeon brings a small part of the bowel to the skin and turns it back like a cuff, creating a soft, pink, moist opening — a little like the inside of your cheek.
A stoma has no nerve endings, so it is not painful to touch. It has no muscle to control it, which is why a pouch is worn to collect waste. The pouch is discreet, odour-proof when closed, and sits flat under clothing — most people you meet would never know it is there.
In colorectal cancer surgery, a stoma is created for one of two reasons: to protect a new join in the bowel while it heals (a temporary stoma), or because the back passage and rectum have had to be removed (a permanent stoma). Whether yours is temporary or permanent is something Dr. Gore will tell you clearly before your operation.
The single most important message: a stoma is a means to an end — it lets us remove the cancer safely and let the bowel heal. For a large number of patients, it is a temporary step on the way back to normal.
The type of stoma depends on which part of the bowel is used and why. This affects what the output looks like and how you care for it.
If there is any chance you will need a stoma, the position is marked on your abdomen before the operation. This single step — stoma siting — is one of the biggest predictors of how easy life with a stoma will be.
This is the practical heart of stoma care. It looks like a lot at first — but within a couple of weeks it becomes a fast, private routine you barely think about.
Most people return to a normal, varied diet. In the first 6–8 weeks the bowel is settling, so a few simple principles help — especially with an ileostomy.
Almost every stoma problem has a simple solution. Use this as a quick reference — and remember your stoma nurse is only a phone call away.
| Problem | Why it happens | What to do | Call for help if… |
|---|---|---|---|
| Sore, red skin | Output leaking onto skin; baseplate hole too big; frequent changes | Re-measure and recut to fit exactly; ensure skin is dry before applying; use barrier products as advised | Skin is broken, weeping or spreading |
| Leaks under the pouch | Poor fit, skin creases, sweating, or stoma in a dip | Check the fit; try a convex baseplate or seal/paste; change before it's too full | Leaks keep recurring despite refitting |
| Ballooning (gas filling bag) | Trapped wind, certain foods, fizzy drinks | Use a pouch with a filter; release gas; adjust gas-forming foods | Persistent and distressing |
| Blockage (ileostomy) | Fibrous food not chewed; narrowing | Stop solids, sip warm fluids, warm bath, knee-to-chest position | No output for hours, cramps, vomiting |
| High/watery output | New ileostomy, infection, some foods/medicines | Rehydrate with salt-containing fluids; thicken diet; review medicines | Dehydration signs, output stays very high |
| Stoma bleeding (slight) | Stoma is delicate; cleaning can graze it | Light oozing on cleaning is normal; apply gentle pressure | Bleeding from inside the stoma, or heavy |
| Stoma colour change | Should be pink/red & moist; dusky = poor blood supply | Note any change; keep it moist | Dark, purple or black stoma — urgent |
| Bulge around stoma (hernia) | Weakness in the abdominal wall over time | Support garment as advised; avoid heavy lifting; many are managed without surgery | Painful, hard, or output stops |
| Stoma retracting or prolapsing | Stoma sinks in, or telescopes out further | Convex pouch for retraction; lie down and apply cool cloth for prolapse | Prolapse darkens, or care becomes impossible |
Red-flag signs that need prompt contact: a stoma that turns dark/purple/black, no output for several hours with cramps and vomiting (blockage), signs of dehydration, or skin that is broken and spreading. When in doubt, call — it is always better to ask early.
This is the part patients most want to hear, and it is true: people with stomas work, travel, swim, exercise, have relationships and raise families. Here's how.
If your stoma was created to protect a healing join, the goal from day one is to reverse it. Here is how that works, and what to expect.
After a low rectal join is reversed, many people notice their bowel habit is different from before. This is called Low Anterior Resection Syndrome (LARS). Knowing about it in advance makes it far less distressing — and there is a great deal we can do to help.
For more on preserving bowel function and avoiding a permanent stoma, see our Sphincter Preservation page.
This page is general information, not personal medical advice. Your stoma type, care plan and reversal timing are individual — please follow the guidance of Dr. Gore and your stoma care nurse, and contact the team with any concerns.
Whether you are preparing for surgery, living with a stoma, or ready to discuss reversal, Dr. Gore and the stoma care team can help. Please bring your operative notes, discharge summary and any recent scans to your consultation — ideally on CD or shared via WhatsApp in advance.